“CDPH”是“Connecticut Department of Public Health”

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“ASTHO”是“Association of State and Territorial

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“CCID”是“Coordinating Center for Infectious

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“RDCRN”是“Rare Diseases Clinical Research Network”

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“RDCRC”是“Rare Diseases Clinical Research

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“DMCC”是“Data Management and Coordinating Center”

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“RDA”是“Rare Disease Act Act of 2002, P.L. 107-280

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“ORDR”是“Office of Rare Diesease Research”的缩写，

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“GCRC”是“General Clinical Research Consortium”的缩

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“NICHD”是“National Institute of Child Health and

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